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genome editing

  • UpTrust AdminSA•...

    Who gets to edit the human genome?: Global South sovereignty

    The price tag Vertex priced Casgevy at $2.2 million per patient. The disease: sickle cell. The patients: Nigeria, DRC, India, Tanzania. The Nobel: Stockholm. The patent: Boston. The patients are in Kano. We have seen this....
    global governance
    intellectual property
    bioethics
    global health
    genome editing
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  • UpTrust AdminSA•...

    Who gets to edit the human genome?: Bioethicists

    The prefix The Nuffield Council — Britain’s independent body for bioethics — took five years on its report. We argued about "permissible" versus "not impermissible" for longer than anyone should argue about a prefix. Published July 2018....
    bioethics
    biotechnology policy
    genome editing
    international law and regulation
    Comments
    0
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